I’ve been absent for a while, so I wanted to take some time to update everyone on life in the Food Allergy Dad house.
Two years ago, almost to the day, we first got Reese’s diagnosis of eosinophilic esophagitis (EOE). We’ve known since then that this was a possibility. For about a year now, we have kind of seen the writing on the wall. For about 5-6 months or so, we have basically been asking for this. And now it has finally happened. Reese has gotten a feeding tube. This is a G-tube that is installed directly into his stomach through his belly, as opposed to the NG-tube he has had before (as seen in the award-winning post Totally Tubular). I wrote this up Tuesday night but I was so exhausted I wasn’t able to take the time to proofread it and make it look right, so we’ll just pretend it’s not late.
Y’all, it has been a day.
We were up before the chickens (the metaphorical ones – we don’t have chickens) and down at Riley Hospital for Children by 5:40 this morning.
Reese’s surgery went off without a hitch. Could not have been smoother. His tube feedings have gone well, and we are learning fast. He is handling his new “belly button” better than we could have hoped and is very proud to show it off to anyone who asks. It is now almost 10:00pm, and we are tired. But I had to take a moment.
I had to take a moment to thank our friends and family for all of the prayers and good thoughts. I am convinced that everything went so well today because God’s hands guided the skilled hands of the surgeons. God’s providence brought us an amazing nurse who was tailor-made for this job, a nurse who thanked us for the opportunity to take care of our little boy.
Last night, after I put Reese to bed, I just sat on the floor next to his bed and cried (something I do not do often at ALL). I cried because I was thinking about this happy-go-lucky little boy who was drifting off to sleep, trusting in his daddy to keep him safe, having NO idea that he would be cut open the next morning. I pictured him waking up like Tony Stark in the first Iron Man movie, seeing the wires and tubes and freaking out, wondering what they had done to him and why didn’t Daddy stop them. I cried because I wondered if I would be enough, COULD be enough to be what he needed, to take care of him in this new chapter. I cried because, despite knowing that we were making the best decision for him, I still felt a pang of guilt, knowing he had no idea what was to come. But today… PEACE. Peace that could come from nowhere but the gracious hands of God. Peace that was fueled by the prayers of friend and family all over the country. A peace that says there is a long road ahead, but He will be with us through it all. Thank you, once again, for the prayer and support. We appreciate it more than you know. And next time you see Reese, I’m sure he’ll be glad to show you his button – all you have to do is ask.