You’ve got this!

You know how when you are told you can’t eat something, that’s all you want?  The doctor says to watch your fat intake, and the only thing you want to eat is a bacon sandwich with bacon bread topped with bacon spread and followed with a side of bacon fries (minus the potato).

Or maybe you are the opposite: rather than dreaming of bacon wrapped bacon, you change everything and live off of celery, despite the vast array of things you can have that are perfectly in your dietary needs.

Sometimes I feel like being a food allergy parent is like that.   Continue reading

Back to School: Approaching the 504

It’s that time of year again… the air is far from turning crisp and cool, but the school buses are running and classes are starting.  It is back to school time! To this day, I love buying school supplies.  Something about fresh, new pencils and notebooks… it’s hard to explain, but there’s nothing quite like it.

books apple school

Unfortunately, for kids with chronic illnesses and severe allergies, school brings a whole host of challenges that the majority of people don’t even think about.  A student with sickle-cell anemia who can’t be exposed to extreme temperatures (eg. fire drills during the winter), a diabetic student who needs to check her blood sugar multiple times a day, a student with a feeding tube who goes to the nurse for lunch and can’t be around food…. Fortunately, there is a way to put a plan in place.   Continue reading

Support

I want to tell you a story….

A few weeks ago, we went on vacation. Packing with kids is always a challenge. Packing with kids with health issues is a whole different level. We have to pack medicine, mixing-shaker bottles (for formula), various medicated creams (so… many… creams…..)…. fortunately we are on a hiatus from the NG tube, so we didn’t have to worry about that. Nevertheless, our little dude essentially has his own suitcase.  Why is that the smaller a kid is, the more luggage they need?

As we are heading out of town, it dawns on us…. no one packed the formula.   Continue reading

Totally Tubular

I once read a blog post (some recipe, I don’t remember what it was) in which the author used the phrase “totally tubular” at least three times.  When I say “I once read,” I don’t mean back in 1989.  I mean just a few months ago, in early 2017.  I just…. I mean…….. *sigh*

But now, I have a reason to write about tubes!  That’s right, meet the blogosphere’s newest tubie! IMG_2414 Continue reading

Moving house (plus a “guest” recipe!)

So we are moving!  Moving is at the same time stressful and exciting.  There is something about a new place that bring a feeling a freshness.  Don’t worry, though.  The kids will find a way to make it un-fresh really quickly!

Because we are moving, I’m taking a short break from posting recipes.  I just can’t put it all together while moving house.  So in the meantime, I wanted to share a recipe I found on Garnished.  Completely allergy-safe, and so easy!

Check it out here:  http://www.youtube.com/watch?v=ySuSFNRmkCU

If you make this, let me know how it turns out for you!

Mother’s Day: A dad’s take

I posted this on Facebook a couple years ago, but it’s worth repeating:

As a father, I have to say I have it pretty easy. Our world doesn’t expect much from fathers. We are allowed to be, in fact, almost expected to be a bit clueless and slightly inept. It’s mothers who are expected to hold everything together. Run the calendar, cook the meals, clean the house, do the crafts, wash and fold the clothes, plan the parties… It’s a bit overwhelming. No, it’s REALLY overwhelming. And wholly unfair. Why is it that fathers are allowed to be unskilled, yet mothers are expected to be perfect? Pinterest moms give us great ideas, but I think they may have taken the place of the magazine models in setting unrealistic expectations. Let’s allow the moms in our lives to be who they are: human.

To my wife: thank you for making my job as a father so wonderful. Thank you for taking care of our daughters and our son. I don’t care if our house isn’t perfect, or if we eat leftovers sometimes. I love you and appreciate you for who you are.

To my mom: thank you for supporting me and for never giving me the opportunity to doubt your love for me.

To my friends and family who are mothers: you have one of the hardest jobs in the world, and when you’re doing it right, few seem to notice. Please know you are loved and appreciated, both for what you do and who you are.

To everyone else: tomorrow is Mother’s Day. If your mom is still around, it’s a great time to thank her for all she has done and all she is. But please, don’t do it only then. Tell her in August, when there’s no other holiday. Tell her on Tuesday, just because it’s Tuesday. Tell her whenever you can, because we don’t tell her enough.

Thank you, moms, and happy Mother’s Day.

When Your Kid Won’t Eat

I have never had a problem eating.  Ok, I shouldn’t say never.  I had food poisoning once, and I had a really hard time eating for a few days after that. But throughout my life in general, eating has never been an issue. I have friends who claim they forget to eat sometimes. Uh…. How on God’s green earth does that happen?!?  I forget to not eat sometimes… on more than one occasion I have had to reschedule medical tests because I ate when I wasn’t supposed to.  But forgetting to eat?  I don’t buy it. Continue reading

It’s Coming!

Sometimes, it’s nice to take a break from thinking about EOE and food allergies and all that junk.  To forget about replacing eggs and dairy.  To not think about peanuts and tree nuts. To not worry about reading the labels of everything to see if soy protein has been somehow slipped in. And this weekend, my friends, is the perfect time to take that break:

fcbd

Check out http://www.freecomicbookday.com for more info

It’s Free Comic Book Day!  Comic books are truly an American art form.  Comics haven’t always been accepted as “legitimate literature,” but when Art Spiegelman was awarded the Pulitzer Prize in 1992 for his graphic novel Maus, people began to sit up and take notice.

Whether superheroes, or cartoons, or graphic retellings of classic pieces (Don Quixote, for example), comics and graphic novels are a great way to enjoy reading.  Or even to introduce your kids to reading.  I will be taking my kids to our local comic book store this weekend for Free Comic Book Day… what about you?

Homemade Sunbutter

Tastes better AND costs less? Sign me up!Homemade SunButter2

I recently saw one of those inspirational quotes online that perfectly describes what today was like.  You know the ones with the beautiful picture in the background that has nothing to do with the actual quote?  This particular one said, “Are you really having a bad day, or just a bad five minutes that you are letting ruin the rest?”  THAT, my friends, was today.  Overall, pretty good.  But man, the way it started left me sour for a good while.  I was supposed to work an event that got canceled, but no one told me it was canceled. After that, everything seemed to go wrong.  Quick stop at Burger King?  Nope, their credit card machines are down.  Run to Taco Bell?  Nope, Reese can’t eat there. Go to the store to buy sunflower seeds.  They contain peanuts.  Um… what?  Start trying to make a new recipe, then get interrupted by a 4-year-old potty emergency, then by not making it to the potty in time…. Seriously, all things considered, it was a good day and it’s a good life.  But man, this post didn’t want to happen today!

Enough complaining, though.  On with the Homemade SunButter! Continue reading